Starting over

Once in a while we do a "Starting over" with supplements and treatments for Nicky. It gives us answers what really helps him and what not and especially what makes him crazy and stimmy. This is the perfect timing right now: We got the test results back last week (see post) where we saw some improvements and some things we have to fix, like the uric acid problem.
We had a terrible weekend with Nicky and couldn't figure it out why. He was loud, unhappy, restless and just kept us on our feet for hours. On Sunday noon, i finally gave him some Benadryl. It was the only thing i knew would help him. And it did, he finally sat down for two hours before he started all over again.
It brakes your heart, and the worse is, there is NO one out there who can help you. It really could be that he is in pain, but there is no way to figure it out. Last night he woke up, sweating, screaming, and i almost heart an "Aua" . It can be everything, just a nightmare, his stomach, his liver, his kidneys, it could be life threatening.
But we have, like almost all parents with kids on the spectrum, given up to talk to pediatricians and neurologist about test results. They don't give it a look, i saw it last week at an appointment in a children's hospital. The doctor was really nice and good, very sensitive and helpful, but he doesn't care about biomedical stuff.

Well anyway, today we start with "No Supplements at all" and i will use this blog as a dairy on his behaviour. I will especially look into sleeping patterns, behavior (stimming, craziness), constipation problems and how therapy sessions work.
See ya later!