Thursday, October 30, 2008

Turning things around

The last weeks we made some changes around Nickys diet. It took me a long time to finally go for it. The first thing we did is changing back to "only" GF/CF and leaving SCD behind us. the last results on Nickys tests came back with very high levels of Yeast in his gut. After all this work over the last 10 months we couldn't get rid of the yucky yeast. And after the decisions for me to go back to work we needed a plan where everyone can cook for the kids. With SCD its a little tricky.
The other thing was a medication called Nystatin. Its good for all kinds of yeast infections through your whole body, from mouth to the "rear end" :O).
The first days on Nystatin where tough, lots of die-off-reaction, with tantrums and sleepless nights. It was tough on us, exhausting and you feel you have to give up on all the intervention you do with him. But then comes the light on the end of the tunnel and you see your child crawl through it. It happened last weekend, we went to see Wolfgangs family. Nicky was in good spirits, he walked miles through the autumn-forest, without being pushed or pulled. He smiled at Onkel Walter and he sniffed on everybody (his new thing for saying "I like you!).

We also started with auto-immunizations. Its a serum, a lab makes out of nickys yeast-overgrow. He takes it and his own body builds up antibodys. He also has reactions on that, but seems to be in a better mood already.
There are plenty things you have to try if you go on the biomedical train. some work on your child, some don't. I am sure we will find the right path soon.
We will start with Tomatis Therapy next year and antiviral-therapy. There is a believe that kids on the spectrum are born with viral infections or they got it early in life. I believe Nicky is one of them, just thinking of the Hip-infections he already had in his life (4). Anybody here with a typical child who had that???? Get the idea?
Well, i keep you posted, stick with us and your good spirits will always support us.
Lots of love
k.

1 comment:

Veganmama said...

good luck, Karin. Nicky is so lucky to have parents who do so much for him. We miss you!